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Child with Chronic lung disease

History and diagnosis:

Jessica was born prematurely at just 28 weeks. Due to immature lung development and a very low birth weight she was unable to breath on her own and needed additional support from a ventilator. This assistance with her breathing continued until Jessica was diagnosed with Chronic Lung Disease which is caused by prolonged high pressure ventilation. This diagnosis meant that Jessica was likely to require some assistance with her breathing for a longer period of time than first thought.

Now at the age of 4 years, Jessica still requires overnight ventilation and oxygen therapy throughout the day via a tracheostomy tube. Jessica’s parents wanted her to attend a mainstream school in order for her to access the same opportunities and facilities open to children of the same age and ability.

The plan:

Voyage Specialist Healthcare were contacted by the local PCT to provide support for Jessica’s on-going Chronic lung disease requirements.  Meetings with Jessica, her parents and her MDT were arranged to fully understand her needs and to develop a person centred care plan. Both Jessica and her family were involved in the recruitment process which sourced suitable healthcare assistants who could support her needs. Once the healthcare assistants had been recruited, they received mandatory clinical training sessions from our in house specialist trainers and on-going clinical competency support from our clinical managers.

The outcome:

Physical and emotional:
Jessica’s chronic lung disease still requires overnight ventilation and oxygen therapy throughout the day via a tracheostomy tube.  She is now attending a mainstream school alongside children of her own age and ability. She is also able to be an active participant in class and becomes involved in all school activities with the support of a healthcare assistant who attends to her medical needs. This in turn provides Jessica’s family with respite time and the overall reassurance that their child is supervised by a competent member of staff who can support the symptoms which are related to her on-going chronic lung disease requirements.

Client and family feedback:
Mr C and his family have reported that they are extremely happy with the care which is provided by VSHC. They are pleased with the level of reliability and clinical competency exhibited by our healthcare assistants in supporting the requirements of Jessica’s chronic lung disease. They also feel happy that we have communicated with them well and have taken on board and acted upon any concerns which they have raised.

Jessica’s family stated that, “It is most definitely a service we wouldn’t be without.”

Commissioner feedback:
Very positive feedback has been received from the PCT regarding the speedy response to the commencement of the care package and the reliability and quality of care being provided by our healthcare assistants in supporting Jessica’s Chronic lung disease

Jessica’s family stated that, “It is most definitely a service we wouldn’t be without.”

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Voyage Care Voyage Specialist Healthcare is part of Voyage Care.

Voyage Care supports thousands of people with learning and physical disabilities, brain injuries, autism and other needs across England, Scotland and Wales.

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